Brian Robert & LCH: Indiana Jones

Saturday, September 22, 2012

Indiana Jones

Brian LOVES Legos and gets fixed on one set. He plays with that theme over and over all day long. He uses all the Legos that he and William share to build whatever the story may be for his favorite theme. Brian has loved Indiana Jones since February. In fact when he was interviewed for his Make A Wish trip he said he wanted to meet Indiana Jones. They granted his wish and Brian had a great experience. (I still need to post all the pics). I was reminded to post the following picture of Brian and Indiana Jones when I found this drawing on my computer desk last week. Our kids draw pictures everyday and everyone is their new favorite. But this one, yes, this one IS a new favorite. Brian drew Indiana Jones.

Brian and Indiana Jones.

When Indiana Jones found out Brian was on his Make A Wish Trip he gave Brian a hat. It's special, you can't go buy it in the gift shop. It is the hat the actor wears in the stunt show. Brian felt like a king. It was great. So of course for Brian's birthday he wanted Indiana Jones Legos. We searched and realized they no longer sell them in the stores. We had to search on E-bay and my, oh my, are they pricey. I must say though, he is one sweet and grateful boy.

1 comment:

nancygrayce said...: How great that he got that hat! Good picture drawing too!; September 22, 2012 at 6:46 PM

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Brian, BB or "B-ber"

Brian is our seven year old boy. He is the third of four children, all born in just four years. Sept 2009 Brian was diagnosed with Langerhans Cell Histiocytosis. He spent seven months on Chemo and steriods. In April 2010 we had his port removed and celebrated "no more chemo!". His treatment from May forward was oral medicine on the weekends and scans/bloodwork every three months. Brian's firt set of scans/follow up with the oncologist in July were wonderful. We didn't quite make it to his second set of scans three months later in October. In late July/ early August we started noticing suspicious bumps on his scalp and a rash on his private area. On Sept 15, 2010 we took Brian to his oncologist. That appointment revealed the possibilty of more chemo. September 21 we had a biopsy that two days later revealed that Brian's LCH was back. We immediately had surgery to implant a port and in Oct 2010 started a second journey through chemotherapy and steroids for our little Brian. In March 2011 Brian's chemo drugs were changed around as his new protocal was not working. Brian was still presenting symptoms. We went back to the original combination of drugs but this time instead of being on them six months the plan was for twelve months. Brian completed his second round of chemo March 8, 2012. Even though Brian was completing treatment, we started noticing symptoms of Diabetes Insipidus in March 2012. He was diagnosed with D.I. March 22, 2012. His new diagnosis was considered a relapse for his LCH. Brian's third round (or fourth protocol depending on how you look at it) of chemo and a totally different protocol began April 2012. He had chemo five days in a row followed by a three week break for 12 months. He completed that protocol the first week of April 2013. In July of 2013 Brian had his port removed and we were over the moon excited about NO MORE CHEMO. In October of 2013 Brian had a recurrence of symptoms. He took six months of oral chemo. In April of 2014 he had another MRI. It was decided that Brian could stop treatment. By August-September 2014 he started showing symptoms again. October 2014 we are back in Houston to see what the next step will be for treatment of Brian's LCH.