Tuesday, June 5, 2012

We are home!!

Brian was able to come home from the hospital with home health care. This is basically a repeat of several weeks ago. We are giving him Vancomycin every eight hours through an infusion with a rental pump.
   We were suppose to leave Monday for Disney World for Brian's Make A Wish Trip, but that is looking like it is not going to happen. We have an appointment with Hem/Onc on Tuesday to follow up with blood work. I will let you know more as we find out but for now please pray that somehow we are still able to take Brian's special trip next week.

  Because home health care could not deliver our medicines to the house until the evening, Brian had to stay in the hospital to receive another dose of antibiotics in the afternoon. We ended up staying at the hospital until 5:30 last night. We were SO glad to get home.
   Brian had lots of time to kill and the day was long. One of the neat things the hospital does is let kids paint ceiling tiles to decorate the children's wing. One of the volunteers that plans activities for  the children came by and asked Brian if he wanted to come play in the play room. When we got down there he saw a stack of ceiling tiles all spread out and some paint (some kids had painted earlier in the day) and he said he would like to paint. The lady sweetly said yes. She got all the paint and brushes for just Brian. He enjoyed himself so much and was quite silly.

example of some of the ceiling tiles

more tiles

Brian, the artist, at work.

Mommy thought to add Brian's handprint, but it only lasted about two minutes before it got covered in paint.

Mr. Silliness showing off his work.

The final product.

1 comment:

nancygrayce said...

Awwww......so cute and what a great thing for them to do and especially when the day is long and the child needs to do something!

So, so glad y'all got to go home! Praying that the Disney trip happens!