Brian Robert & LCH: Happy Easter

Sunday, April 8, 2012

Happy Easter

He Is Risen! And because He is risen we have hope and a future. We have eternal life with no sickness, tears and pain and we are with HIM forever. We rejoice all the more this year and long for life with our Saviour.

Coming off a really bad week, we are tired and feel struck down. But we know that we are not destroyed. God is our help and our strength. It has been a joy, and such a source of encouragement to see HIM shine through our little five year old. Brian has been through a lot this week and he is still smiling. He is amazing. You can see from the picture I took below that his port has five marks from Mon, Tues, Wed, Thurs and Fri chemo pricks. Yet right below that is a picture of sweet Brian being goofy and wanting me to take silly pictures of him.

Brian is excited for Easter but not for candy and chocolate. He is most excited about going through our Resurrection Eggs as a family tonight. He wants to be the one to tell the story of Jesus rising from the dead. He loves opening the last egg and screaming "It's empty! Just like the tomb was empty b/c Jesus rose from the dead!!"

He Is Risen!

1 comment:

nancygrayce said...: Beautiful children! I still remember my little grandson telling me how much he liked the resurrection eggs when he was about 4 years old. I sent them in his basket and prayed he would get a message of Christ!; April 9, 2012 at 7:14 PM

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Brian, BB or "B-ber"

Brian is our seven year old boy. He is the third of four children, all born in just four years. Sept 2009 Brian was diagnosed with Langerhans Cell Histiocytosis. He spent seven months on Chemo and steriods. In April 2010 we had his port removed and celebrated "no more chemo!". His treatment from May forward was oral medicine on the weekends and scans/bloodwork every three months. Brian's firt set of scans/follow up with the oncologist in July were wonderful. We didn't quite make it to his second set of scans three months later in October. In late July/ early August we started noticing suspicious bumps on his scalp and a rash on his private area. On Sept 15, 2010 we took Brian to his oncologist. That appointment revealed the possibilty of more chemo. September 21 we had a biopsy that two days later revealed that Brian's LCH was back. We immediately had surgery to implant a port and in Oct 2010 started a second journey through chemotherapy and steroids for our little Brian. In March 2011 Brian's chemo drugs were changed around as his new protocal was not working. Brian was still presenting symptoms. We went back to the original combination of drugs but this time instead of being on them six months the plan was for twelve months. Brian completed his second round of chemo March 8, 2012. Even though Brian was completing treatment, we started noticing symptoms of Diabetes Insipidus in March 2012. He was diagnosed with D.I. March 22, 2012. His new diagnosis was considered a relapse for his LCH. Brian's third round (or fourth protocol depending on how you look at it) of chemo and a totally different protocol began April 2012. He had chemo five days in a row followed by a three week break for 12 months. He completed that protocol the first week of April 2013. In July of 2013 Brian had his port removed and we were over the moon excited about NO MORE CHEMO. In October of 2013 Brian had a recurrence of symptoms. He took six months of oral chemo. In April of 2014 he had another MRI. It was decided that Brian could stop treatment. By August-September 2014 he started showing symptoms again. October 2014 we are back in Houston to see what the next step will be for treatment of Brian's LCH.