Brian Robert & LCH: Brian's Best Friend

Sunday, September 26, 2010

Brian's Best Friend

Brian (as Spiderman) and Ellie

This precious little girl is Brian's best friend. One year ago when Brian was first diagnosed Ellie colored a picture and decorated it with Cars stickers just for Brian. Brian liked it so much that we taped it to his wall beside his bed. Today after church Ellie dropped by our house to give Brian another sweet picture and note. She looked through her coloring book for just the right picture for Brian. If you can see it is of Hello Kitty at the hospital and the doctor is giving her a check up.

Brian's first picture from Ellie stayed taped to his wall for months and months! We still have it. It's wrinkled and torn and very special. Mommy had set it aside to go in Brian's scrapbook, but when the new picture was dropped off this afternoon Brian wanted them both taped up next to his bed. William asked Brian if he was going to marry Ellie since he likes her so much. Brian said, "No. I am going to marry Mommy, but Ellie is going to be my best friend forever."

Ellie's mommy told me that Ellie never forgets to pray for Brian and consistently reminds her parents to please pray for him.

Deuteronomy 6:5-9 Ellie's parents do a wonderful job teaching and showing her God's love and His commandments. Ellie's love for God and compassion for others (right now specifically Brian) is such an encouragement. What a reminder to us adults as we see this four year old live and love. Mark 10:13-16

Brian's special Ellie pictures next to his bed

2 comments:

dh said...: that is so sweet!! I clicked on the bottom picture and could read what Ellie wrote to brian about loving him.

what a sweet little girl.

and I laughed that William asked Brian that...william is so sweet!; September 26, 2010 at 6:17 PM
Jessica Teplicek said...: WHAT A STUD! :) lol super sweet!; September 26, 2010 at 8:01 PM

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Brian, BB or "B-ber"

Brian is our seven year old boy. He is the third of four children, all born in just four years. Sept 2009 Brian was diagnosed with Langerhans Cell Histiocytosis. He spent seven months on Chemo and steriods. In April 2010 we had his port removed and celebrated "no more chemo!". His treatment from May forward was oral medicine on the weekends and scans/bloodwork every three months. Brian's firt set of scans/follow up with the oncologist in July were wonderful. We didn't quite make it to his second set of scans three months later in October. In late July/ early August we started noticing suspicious bumps on his scalp and a rash on his private area. On Sept 15, 2010 we took Brian to his oncologist. That appointment revealed the possibilty of more chemo. September 21 we had a biopsy that two days later revealed that Brian's LCH was back. We immediately had surgery to implant a port and in Oct 2010 started a second journey through chemotherapy and steroids for our little Brian. In March 2011 Brian's chemo drugs were changed around as his new protocal was not working. Brian was still presenting symptoms. We went back to the original combination of drugs but this time instead of being on them six months the plan was for twelve months. Brian completed his second round of chemo March 8, 2012. Even though Brian was completing treatment, we started noticing symptoms of Diabetes Insipidus in March 2012. He was diagnosed with D.I. March 22, 2012. His new diagnosis was considered a relapse for his LCH. Brian's third round (or fourth protocol depending on how you look at it) of chemo and a totally different protocol began April 2012. He had chemo five days in a row followed by a three week break for 12 months. He completed that protocol the first week of April 2013. In July of 2013 Brian had his port removed and we were over the moon excited about NO MORE CHEMO. In October of 2013 Brian had a recurrence of symptoms. He took six months of oral chemo. In April of 2014 he had another MRI. It was decided that Brian could stop treatment. By August-September 2014 he started showing symptoms again. October 2014 we are back in Houston to see what the next step will be for treatment of Brian's LCH.