Brian Robert & LCH: All is Well

Thursday, September 13, 2012

All is Well

Thanks for praying for Brian last week. He did get sick on day two (as always), however, we didn't have to go to the ER. That's a huge blessing.
We had our AC on our van repaired. We are so thankful that Fred knows a good mechanic that we trust. We aren't out an outrageous amount of money. I am pretty sure he gave us a break on labor costs because he ended up having to repair a part he replaced last summer. The warranty expired at 12 months, but the mechanic still felt bad that it went out so quickly. Very awesome. God provides.
Brian's counts will drop over this coming week and a half. Instead of having three weeks to recover he will only have two. I guess they are trying to get him back on track after missing a week b/c of the hurricane. Plus, if they didn't try to "make that time up" he would be due to receive chemo the week of Christmas. That's not cool, so we are thankful that they are looking at things like that. We are concerned about his little body so please pray that he is able to handle chemo sooner than his body is used to.
All is well in the Schreiber house. Thank you for loving us and praying for us.

Here are some cute pictures of Mr. Brian and his bestie and older brother, William.

These two always have tons of fun together, but when it comes to school I typically have to separate them. They are only a year apart, so there are some things that they do together. William gets SO mad if I am asking him a question and Brian yells out the answer. God has just gifted Brian with some smarts. He has never really "done" school, but he has just absorbed everything he hears Ansley and William learning. This year Brian is in Kindergarten. Yesterday I attempted to be fun Mom and we did our spelling and phonics outside. I made boys sit back to back so they couldn't see what the other was writing.
For those of you that are curious what we are doing, we are using our All About Spelling curriculum. I LOVE it. In this picture you see me reviewing with the boys. I say a sound and they write down what they heard. Then we mix it up and I say a letter and they tell me the sounds that letter makes. For exampe, C says /k/ and /s/. They then say the rule that C says /s/ before e, i or y.

These boys are just too cute!!!

1 comment:

nancygrayce said...: Thanking God with you! Every time I read your posts, I tear up and wonder if I could be so strong, the strength of your family always makes me stand in amazement!; September 13, 2012 at 10:15 AM

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Brian, BB or "B-ber"

Brian is our seven year old boy. He is the third of four children, all born in just four years. Sept 2009 Brian was diagnosed with Langerhans Cell Histiocytosis. He spent seven months on Chemo and steriods. In April 2010 we had his port removed and celebrated "no more chemo!". His treatment from May forward was oral medicine on the weekends and scans/bloodwork every three months. Brian's firt set of scans/follow up with the oncologist in July were wonderful. We didn't quite make it to his second set of scans three months later in October. In late July/ early August we started noticing suspicious bumps on his scalp and a rash on his private area. On Sept 15, 2010 we took Brian to his oncologist. That appointment revealed the possibilty of more chemo. September 21 we had a biopsy that two days later revealed that Brian's LCH was back. We immediately had surgery to implant a port and in Oct 2010 started a second journey through chemotherapy and steroids for our little Brian. In March 2011 Brian's chemo drugs were changed around as his new protocal was not working. Brian was still presenting symptoms. We went back to the original combination of drugs but this time instead of being on them six months the plan was for twelve months. Brian completed his second round of chemo March 8, 2012. Even though Brian was completing treatment, we started noticing symptoms of Diabetes Insipidus in March 2012. He was diagnosed with D.I. March 22, 2012. His new diagnosis was considered a relapse for his LCH. Brian's third round (or fourth protocol depending on how you look at it) of chemo and a totally different protocol began April 2012. He had chemo five days in a row followed by a three week break for 12 months. He completed that protocol the first week of April 2013. In July of 2013 Brian had his port removed and we were over the moon excited about NO MORE CHEMO. In October of 2013 Brian had a recurrence of symptoms. He took six months of oral chemo. In April of 2014 he had another MRI. It was decided that Brian could stop treatment. By August-September 2014 he started showing symptoms again. October 2014 we are back in Houston to see what the next step will be for treatment of Brian's LCH.