Trying to Update You...



Poor Brian. This has become the spot for BB.

Well, we had some great news this week but I haven't been able to update you. We've had the throw up virus at our house and our computer died. The computer thing wasn't unexpected. It has been dying a slow and painful death for months now. We were just trying to stretch it out until the beginning of next year. Didn't happen. New computer up and running.
   Last night started Brian's turn with the throw ups. In the middle of the night he started complaining about throwing up and dry heaved enough to make his nose bleed out of both nostrils. It was really sad!! I freaked out just a wee bit. :) Back to the update. Brian's water deprivation test and brain MRI came back revealing that he didn't have DI and he did not appear to have Histio involvement in the brain. This is all good news. It means that they are leaving Brian's diagnosis as single system involvement and low risk. We kinda have two doctors right now as our original doctor has clinic days on Tuesday and Wednesday and we really needed Friday to be our chemo day. We've switched to Friday's and it works out because we love the doctor that we see on Friday too. Although this Friday we will see our first doctor as our Friday doctor will be on vacation. OK, wow, too much information. :) Between our two doctors the latest information we've received is that Brian will now be on chemo for one year. After consulting with three of the leading experts in Histiocytosis and reading a bunch of articles, studies, etc. our doctor has changed our course of action to an initial six weeks of Vinblastine and Dexamethasone, then the remaining ten and half months will be two other chemo drugs that are most frequently used to treat leukemia. Brian took Vinblastine for seven months during his first round of chemo, but he took it with a less powerful steroid. The other two chemo drugs we have not played around with. We shall see how he responds. We are praying that this time we "get it" and Brian will not have another recurrence. Must run. Poor little guy is really tuckered out from the throw ups. I will call his oncologist in the morning and I am praying that he will not have to go in or be admitted to the hospital.