Wednesday, May 30, 2012

Third Chemo Week- Days 1 & 2

Week Three of chemo started out on Tuesday b/c of the holiday on Monday. We were told that Brian's doctor adjusted the medicine he receives over a five day period to fit it into four days. That means each day of this chemo week Brian will receive a higher dose each day.

Tuesday was LONG. We arrived at the hospital at 8:30 AM. The girls and I had to leave at 2:15 PM to get to ballet on time. (Their recital is next weekend and that was their last ballet class at the studio.) Fred and the boys were able to leave the clinic around 3. We spent most of the day waiting. Waiting on blood work results from the lab, waiting on chemo to be made and waiting on the staff to get to us. It was a busy day for them. 


We had all the kids with us. They did AMAZING. Several people commented on them behaving so well. It was totally God blessing us, because they are not typically as well behaved as they were on Tuesday. Especially when they are cramped into a small room for hours on end.

Things did get a little crazy towards the end of the day when Brian was asked to share his water bottle. He didn't want to share with William and threw quite a fit. He hasn't thrown a two year old temper tantrum like that in quite a while, so I took pictures. We showed him the picture and he was laughing about it. Yes, the big fit was over sharing a sip of water.





Wednesday (day two of chemo week) went fine. Grandma and Grandpa Schreiber arrived from NM lateTuesday afternoon so they stayed home with the other three kids. Brian's apointment only took two and a half hours. Brian did great. He took Mickey Mouse with him because he is looking forward to our Disney Trip in a few weeks.

After lunch Grandpa and Grandma needed to run to Sam's. All the kids wanted to go along, so against my better judgement I said we would all go. Fred and I always try to find the balance between allowing Brian to be "normal" and knowing when to tell him no he can't participate. We were in Sam's all of six minutes when Brian started asking to go home. He really didn't feel well. Brian and I went to the car while Grandpa and Grandma quickly finished their purchases.

Brian in Olivia's car seat. He normally sits in the back, but wasn't up for climbing back there himself.

Brian fell asleep on the couch and continued to say his head hurt, he was cold and he didn't feel well.
He was running a fever. He slept off and on.

 He did not eat dinner, and by 7 was running a temp of 102 and throwing up. We phoned the oncologist on call (Dr. Schwartz) who told us to head to the ER. He said if Brian was not neutrapenic (counts below 500) he would allow us to go home after antibiotics, but if Brian was neutrapenic he would be admitted. He also told us that Brian's counts were 900 on Tuesday morning before chemo.





After three hours and some antibiotics Brian was able to come home. We were thrilled that he was not admitted, but we were sad to know that this is his reaction to the new chemo drugs. Thank you for your continued prayers for Brian Robert.

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