We arrived at Nemours at 8:30 AM for Brian to be accessed. Then we waited for a while for a room to be ready at the hospital. We moved over to hospital around 9:45 ish and ended up in a regular peds room because every single oncology bed is full. That's sad. I think our oncology wing has nine rooms. The two times we've been admitted since our journey began there have never been more than a couple of kids. Now, they are full. Fred and I are grateful we are just here for the day. After a couple hours in our room we are just now a little before noon getting started. I remembered this thing being a crazy long procedure but apparently the crazy long part is not the actual administering of the IVIG but the hospital side of getting it set up and then discharging us.
Right now Brian is playing his Leapster and Daddy is working from his laptop (comfortably from the bed since B is still scared if it.) We should be done in four hours.
I am praying for you guys! Keep your eye on your mail as we are sending you something!
ReplyDeleteKate
Looks like the leapster is keeping him happy. Prayers!
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