On Tuesday we had Brian's blood work done to check his counts. The results came back on Wednesday and his counts were even lower than the previous Friday. We took him back this morning and the lab was closed. We ended up going downstairs to the diagnostic center (all of this is at the hospital) and it was a disaster. Poor Brian was poked several times and the lady fished around in his arm with the needle but never got blood. If Brian needs blood work that they don't get from his port we typically put some Lidocaine cream on him so he doesn't feel the prick. When the lady fished in the numb arm it wasn't too bad. When she moved over to the arm that didn't have cream Brian screamed. The lady was getting ready to move down to Brian's hand/wrist to fish around there and Mommy called a halt. Mommy said we were not going to keep "trying" but we would come back on Monday and go to the lab. Thank you very much. Mommy should have immediately protested as soon as she recognized the nurse as the women being trained in the lab on Tuesday. It was this lady's first week at Sacred Heart. Everybody needs time to learn and get comfortable, but little Brian will not be anybody's testing ground. He goes through so much already. Anytime we can minimize some stress and discomfort we do. So, Monday we will go back and see our lady, Miss Jean, at the Pediatric Lab. We will keep you posted.
The hematology/oncology clinic has a play area in the back near the infusion rooms. No children except patients have access to this area. It's different than the waiting room.
This picture is just adorable. This is from Brian's birthday in August. Grandma Hayes gave Brian a HUGE Woody doll and the Woody PJ's he is wearing. I included this picture because it shows what our Brian normally looks like. The steroids and chemo have made Brian look huge and swollen. It's sad to look at him now because he just looks like a sick child to us. This is our BB...
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