Brian had his first dose of chemo yesterday. It went well. He did not have to be held down and physically restrained by Fred. That is a HUGE answer to prayer as Brian has blamed Fred for all this happening to him and channeling all of his anger and emotion toward Fred. That would show itself in Brian saying he was mad at Daddy or he would quite frequently not even acknowledge that Fred was talking to him or even in the room. If Fred said "I love you Brian" Brian would then look away from Fred and not acknowledge he heard Fred. Then Brian would look at me and say, "I love you, Mommy." Even two weeks ago when Brian got his port implanted he was angry at Fred. Brian knows that port means chemo and chemo means "Daddy pins me down while nurses stick me and take my blood." While he is young, Brian is very aware of what is going on and remembers a lot more than we had hoped he would. When we ask Brian what we can do for him as he is upset or getting nervous about a doctors appointment, Brian's response is almost always "pray that I don't have to have a port and chemo when I am five."
Brian has been showing a few more symptoms lately. He is having a water deprivation test with a Pediatric Endocrinologist (Dr. Kummer) tomorrow morning to rule out Diabetes Insipidus. We are pretty confident he has it, which is evidence that the Histiocytosis is attacking his brain, specifically the pituitary gland. Brian will have a MRI early next week to see if there is a presence of Histio in his brain. If he has this diabetes insipidus (and the brain involvement of Histio) than we will change the level of chemo we are currently scheduled to do, to something much more aggressive. Please be in prayer for Brian and our family this coming week.
Romans 11:33-36
Oh, the depths of the riches of the wisdom and knowledge of God! How unsearchable his judgements and his paths beyond tracing out! Who has known the mind of the Lord? Or who has been his counselor? Who has ever given to God, that God should repay him? For from him and through him and to him are all things. To him be the glory forever! Amen.
Oh Carrie I am so glad that Fred did not have to hold him down last week. Yay for that! I am sorry about the possibility of Diabetes Insidpidus. We will continue to pray.
ReplyDeleteLove,
Kate VY
Carrie,
ReplyDeleteJust read through all of your posts... we are praying TODAY that Brian's ultrasound will not reveal histio in his brain and that they will not have to increase the level of chemo. We will be praying for courage and strength for your entire family this week and in the weeks to come.
Love,
Starla Dolihite