Update 9/21

Brian had a biopsy of one of the bumps on his scalp yesterday(9/21/10). He was so brave. We told him what he had to do and he was OK. He asked Mommy twice, "just one needle in my head, Mommy, right? Just one needle?" When we got to the appointment he was Mr. Personality and never freaked out. He chatted with everyone and told the doctor what was going to happen. She reassured him and told him step by step what was going on (minus the razor digging part of his scalp off...he couldn't feel that part b/c the "one needle" made him numb). He did AWESOME! He never struggled to get away from Mommy's grip and never jerked his head away. He didn't cry or fuss. I was so proud! After she finished Brian turned and looked at me and said, "I was so brave, Mommy. I am a brave, big boy!"



Brian's "Rain Forest Cafe"



We will find out the results in one week. If it is LCH then we start chemo again. Being that Brian had his port removed on April 30, 2010 we would have to have another one put back in. That conversation with Brian was tough. He knows what that means and he HATES chemo.

Please be in prayer that Brian has some other dermatological issue and not LCH again. As the Doctor told me yesterday, we have very good reason to assume it's LCH. Given Brian's history that is probably what it is, but we should just wait until we get the pathology report back in a week. It could be something else. We shall see.

Even if we have to start over with a more aggressive chemo (higher dose and longer treatment) we know we are in God's hands. HE is faithful and HE has promised to never leave us or forsake us(Deuteronomy 31:6, Josh 1:9, Heb 13:5). Trusting in HIS sovereignty doesn't mean that we understand. Or that all things work out "perfectly", but that in HIS sovereign hands we rest knowing that HE is there with us through the chemo. We know that HE is our shield and reward so we can trust in HIM (Gen 15:1). HIS grace is sufficient and HIS power is made perfect in weakness (2 Corinthians 12:9). We pray that we would reflect HIS glory no matter what path we may have to take (1 Corinthians 10:31). As a Mommy, I pray that Brian and our other three young children would grow to love God and know HE is a loving God even amidst great suffering and trials.